Dearest Mother,
I'm sorry that I'm not quite right, I'm not so normal as I
should be. I know you are sad, I know your heart aches, I see all the tears roll
down your face. You've waited nine long months for me ... and now ... I'm not
quite right
But Mother, dear Mother, Don't harden your heart to me when you
gaze at me. Please don't see just what is wrong. Rather - see how much I'll have
to give to you. Yes, I will need extra care from you. My demands will be greater
than others, just because ... I'm not quite right
But Mother, Your reward will be higher, The treasures in your
heart will be greater, For as you have to give to me more love, tenderness and
care, God will give you a greater measure of all these things you need. And in
the years to come people will see in you the fruit of love, gentleness, patience
and kindness because of what you've given to me!
For God in His wisdom looked down from above And, knowing I need
extra care and love, He chose for me - the very best of mothers ... So here I
am, even though I'm not quite right.
found at:
http://rainforest.parentsplace.com/dialog/get/birthdefects2/7.html
Courtesy of Jennifer Lamb whose 16 year old son, Nicholas has Goldenhar
Sydrome.