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Goldenhar Syndrome Support Network Society
Copyright © 1998
All Rights reserved.
Email: Webmaster
Site Last updated:
January 22, 2006

Visitors since
January 22, 2006

Goldenhar Syndrome Support Network Society
9325 163 Street;
Edmonton, Alberta;
T5R 2P4; Canada

Email: support@goldenharsyndrome.org

Website: http:www.goldenharsyndrome.org

Free Mailing List Subscription:
http://groups.yahoo.com/group/goldenharsyndrome

Mailing List for Personally Affected Members Only:
http://groups.yahoo.com/group/goldenharadults/

If you would like to make a donation to help defray the costs of running this support group you can do so by either mailing your donations to the Goldenhar Syndrome Support Network Society at the address listed above, or you can make a secure donation online through Paypal using the button below.

Our Mission

Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions.

(Please see Affected Systems for more information.)

Disclaimer:

I am not a Medical Professional.

I am the mother of a girl, born in 1995, with Goldenhar Syndrome. I run a support group for those persons who are involved with Goldenhar Syndrome.

Under no circumstances should this site, or any links found on it, be interpreted as medical advise. Each case of Goldenhar Syndrome is different and the information in these pages are just a guideline for you and your medical professionals to get an idea of what can be involved.