Resources

Below you will find various other Organizations that may be of use to you. Please be sure to inform us if you think we have missed any that should be listed here.
Canada United States of America United Kingdom Sweden Let's Face It, Inc. Regularly updated directory of resources for specific conditions The Children's Craniofacial Association has published a series of 'A Guide to understanding' booklets for parents, which explain craniofacial conditions and their treatment. A Guide to Understanding Hemifacial Microsomia A Guide to Understanding Microtia
Canada CORD (Canadian Organization for Rare Disorders) P.O. Box 814 Coaldale, Alberta T1M 1M7 Contact: Maureen Gaetz-Faubert Phone: 403-345-4544 Fax: 403-345-3948 Toll Free: 1-877-302-7273 Email: maur@cord.ca http://www.cord.ca/
Ability Online 919 Alness Street North York, Ontario M3J 2J1 Phone: 416-650-6207 Toll Free: 1-866-650-6207 Fax: 416-650-5073 Email: information@ablelink.org http://www.ablelink.org/	AboutFace International 123 Edward St., Suite 1003 Toronto, Ontario, Canada M5G 1E2 Phone: 416-597-2229 or 1-800-665-3223 (FACE) Fax: 416-597-8494 E-mail: info@aboutfaceinternational.org http://www.aboutfaceinternational.org/main.html Syndromes and Conditions *information and emotional support to individuals with facial differences and their families*
United States of America NORD (National Organization for Rare Disorders Inc.) 55 Kenosia Avenue; PO Box 1968 Danbury, CT 06813-1968 Phone: 203-744-0100 Tollfree: 800-999-6673 (voicemail only) TDD Number: 203-797-9590 203-798-2291 Email: orphan@rarediseases.org http://www.NORD-RDB.com/
Birth Defect Research for Children, Inc. Suite 225 - 930 Woodcock Road Orlando, Florida 32803 Information line: 407-245-7035 Birth Defect Registry Hotline: 800-313-ABDC Email: staff@birthdefects.org http://www.birthdefects.org/ (formerly known as ABDC or Association of Birth Defect Children, Inc.)	Children's Craniofacial Association 13140 Coit Road, Ste. 307 Dallas, TX 75240 Toll Free: 1-800-535-3643 Email: areeves@ccakids.com http://www.ccakids.com
Craniofacial Foundation of Arizona P.O. Box 50987 Phoenix, AZ 85076-0987 Phone: 480-753-1800 Fax: 480-753-1801 Toll Free: 1-877-HPY-FACE (1-877-479-3223) Email: azcranio@earthlink.net *http://www.azcranio.com/* a non-profit organization dedicated to providing financial and emotional support to craniofacial patients and their families, as well as promoting educational programs that increase awareness and acceptance of craniofacial conditions	FACES: National Craniofacial Association P. O. Box 11082 Chattanooga, TN 37401 Phone: 800-332-2373 E-mail: faces@faces-cranio.org http://www.faces-cranio.org
Let's Face It, Inc. PO Box 29972 Bellingham, WA 98228-1972 Contact: Betsy Wilson, Director Phone: 360-676-7325 http://www.nas.com/~letsfaceit/ maintains a directory of resources for specific conditions that is updated regularly	National Health Law Program 1101 14th Street, NW, Suite 405 Washington, DC 20005 Phone: 202-289-7661 http://www.healthlaw.org Provides extensive information on health care law affecting families with children who have special health care needs.
National Foundation for Facial Reconstruction 317 East 34th Street, Room 901 New York, New York 10016 Phone: 212-263-6656 Fax: 212-263-7534 Email: info@nffr.org http://www.nffr.org/	Operation Smile 6435 Tidewater Drive Norfolk, VA 23509; USA Phone: 757-321-7645 Fax: 757-321-7660 http://www.operationsmile.org/
Wide Smiles Po Box 5153 Stockton, CA 95205-0153 Phone: 209-942-2812 Fax: 209-464-1497 E-Mail: webmaster@widesmiles.org http://www.widesmiles.org/ *for parents of cleft-affected children*	World Craniofacial Foundation 7777 Forest Lane, Ste C-621 PO Box 515838 Dallas, TX 75251-5838 Phone: 972-566-6669 or 1-800-533-3315 Fax: 972-566-3850 E-mail: worldcf@worldnet.att http://www.worldcf.org/
United Kingdom
Changing Faces The Squire Centre 33-37 University Street London WC1E 6JN Phone: 0845-4500-275 Email: info@changingfaces.org.uk http://www.changingfaces.org.uk/	Let's Face It 72 Victoria Avenue, Westgate On Sea, Kent CT8 8BH Contact: Christine Piff Phone: 01843-833724 Email: chrisletsfaceit@aol.com http://www.lets-face-it.org.uk/index.html
Hemimelia Support Group (based in UK) Support group for Hemimelia (congenital absence or shortening of the tibia, fibula, radius or ulna)
Sweden
Mun-H-Center Box 2046 SE-436 02 Hovås Phone: +46 (0)31 750 92 00 Fax: +46 (0)31 750 92 01 E-mail: mun-h-center@vgregion.se http://www.mun-h-center.se