goal is to provide Support and Information to families and individuals
involved with Goldenhar Syndrome and its many related conditions.
for more information.)
not a Medical Professional.
the mother of a girl, born in 1995, with Goldenhar Syndrome. I run a
support group for those persons who are involved with Goldenhar
Under no circumstances should this site, or any links found on it, be
interpreted as medical advise. Each case of
Goldenhar Syndrome is different and the information in these pages are
just a guideline for you and your medical professionals to get an idea
of what can be involved.