Make your own free website on Tripod.com

Goldenhar Syndrome Support Network

 

  • Home
    Welcome
    FAQs
    Therapy
    Resources
    Current Research
    Dysmorphic Child
    Inspirational Pages

 

 
View Our Guestbook
Sign Our Guestbook

Goldenhar Syndrome Support Network Society
Copyright 1998
All Rights reserved.
Webmaster

Site Last updated:
January 22, 2006

Visitors since
January 22, 2006

Goldenhar Syndrome Support Network Society

Website: http:www.goldenharsyndrome.org

Free Mailing List Subscription:
http://groups.yahoo.com/group/goldenharsyndrome

Mailing List for Personally Affected Members Only:
http://groups.yahoo.com/group/goldenharadults/

Our Mission

Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions.

(Please see Affected Systems for more information.)

Disclaimer:

I am not a Medical Professional.

I am the mother of a girl, born in 1995, with Goldenhar Syndrome. I run a support group for those persons who are involved with Goldenhar Syndrome.

Under no circumstances should this site, or any links found on it, be interpreted as medical advise. Each case of Goldenhar Syndrome is different and the information in these pages are just a guideline for you and your medical professionals to get an idea of what can be involved.